The only UK charity dedicated to supporting people with rare and complex neurological conditions has launched a nationwide call for new volunteers. The Progressive Supranuclear Palsy Association (PSPA) is actively recruiting for its befriending service, a vital lifeline for individuals and families facing the profound isolation that can accompany a devastating diagnosis.
The Impact of Rare Brain Diseases
Progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are rare, incurable brain diseases. A diagnosis is life-changing, not only for the patient but for their entire family network. The conditions can lead to significant physical and cognitive challenges, often resulting in immense strain on mental health and a deep sense of isolation as families come to terms with an uncertain future.
How the Befriending Service Works
PSPA's befriending service aims to tackle this isolation head-on by pairing compassionate volunteers with local residents affected by PSP or CBD. Volunteers are asked to commit a modest amount of time: just two to three hours per week or fortnight. This commitment involves providing a consistent, friendly point of social contact, which could be as simple as sharing a regular cup of tea, having a chat, or making a phone call.
The charity is specifically looking to bolster its volunteer numbers in several key regions across the UK. Current recruitment hotspots include Birmingham, Bristol, Leicestershire, and Staffordshire, though applications from all areas are welcomed. Volunteers are requested to support their matched individual for at least one session every two weeks, with a minimum overall commitment of 12 weeks to provide stability and build a trusting relationship.
Training, Support, and Making a Difference
Understanding the sensitive nature of the role, PSPA ensures all volunteers are fully prepared. The charity provides comprehensive training and ongoing support from its dedicated team, so volunteers feel confident and equipped for their befriending duties.
Lavonne McCormmack, PSPA's Volunteer Coordinator, emphasises the transformative power of the service. She highlights that the charity's core mission is to ensure no one has to face these difficult conditions alone. The social connection offered by a volunteer can be a crucial link to the outside world for both a patient and their weary carer.
David, an existing befriending volunteer, has witnessed this impact firsthand. He notes that the relief for a carer to speak with someone who understands their journey is truly significant, offering a much-needed respite and a listening ear.
For those with a few spare hours and a desire to make a tangible difference in their community, this role offers a powerful opportunity. Interested individuals can find more details and apply directly through the PSPA website, or contact the volunteer coordinator on 01327 356137.
